Photo: Norah Needs You/FacebookCalifornia parents are fighting to find their 5-year-old daughter abone marrow transplantbefore it’s too late.Norah Gratz-Lazarus of Alameda was diagnosed with Fanconi anemia (FA), an extremely rare genetic disorder that affects 31 kids a year in the U.S. and ultimately leads to bone marrow failure.Without a bone marrow transplant, her family tells the news outlet, there is 90 percent chance that she will develop leukemia or bone marrow failure, her family tellsABC 13. Her parents have been trying to find her a match since her diagnosis, but have had no luck so far — even after getting 1,600 people to register as possible donors.According to the U.S National Library of Medicine, the condition affects many parts of the body and can lead to not only bone marrow failure, but physical abnormalities, organ defects and an increased risk of certain cancers.“It’s confusing because when you look at her, she looks like this totally normal kid. And she’s doing all these totally normal things. You don’t look at her and think that she has a life-threatening disease,” her mom, Rachel Gratz-Lazarus, tells the news outlet. “I want her to go to school. I want her to graduate from high school. I want her to go to college. It’s heartbreaking. We love her. It’s really hard,.”Her father, Zachary Gratz-Lazarus, adds: “Our fears and anxiety about the future are completely overwhelming.”Norah initially began experiencing progressive hearing loss and stunted growth, which led to her diagnosis. Both Rachel and Zachary are now on a mission to have more people sign up as donors onthrough their campaign page. The process is as easy as a cheek swab.“Unfortunately, none of Norah’s family members are a match for her,” her parents wrote on their Facebook page for their daughter. “Norah has a donor match out there – it could be YOU. Join the “Be The Match” registry with a simple, painless cheek swab to help save Norah’s life. Adding donors to the registry increases the likelihood of finding a life-saving match for Norah and others in need.”Rachel says their desperate search began after discovering that no in their family was a match.“So, that basically puts us in a place where her life depends on the generosity of strangers,” she told ABC. “We know that this is in some ways our way out. That it is the cure.”
Photo: Norah Needs You/Facebook
California parents are fighting to find their 5-year-old daughter abone marrow transplantbefore it’s too late.Norah Gratz-Lazarus of Alameda was diagnosed with Fanconi anemia (FA), an extremely rare genetic disorder that affects 31 kids a year in the U.S. and ultimately leads to bone marrow failure.Without a bone marrow transplant, her family tells the news outlet, there is 90 percent chance that she will develop leukemia or bone marrow failure, her family tellsABC 13. Her parents have been trying to find her a match since her diagnosis, but have had no luck so far — even after getting 1,600 people to register as possible donors.According to the U.S National Library of Medicine, the condition affects many parts of the body and can lead to not only bone marrow failure, but physical abnormalities, organ defects and an increased risk of certain cancers.“It’s confusing because when you look at her, she looks like this totally normal kid. And she’s doing all these totally normal things. You don’t look at her and think that she has a life-threatening disease,” her mom, Rachel Gratz-Lazarus, tells the news outlet. “I want her to go to school. I want her to graduate from high school. I want her to go to college. It’s heartbreaking. We love her. It’s really hard,.”Her father, Zachary Gratz-Lazarus, adds: “Our fears and anxiety about the future are completely overwhelming.”Norah initially began experiencing progressive hearing loss and stunted growth, which led to her diagnosis. Both Rachel and Zachary are now on a mission to have more people sign up as donors onthrough their campaign page. The process is as easy as a cheek swab.“Unfortunately, none of Norah’s family members are a match for her,” her parents wrote on their Facebook page for their daughter. “Norah has a donor match out there – it could be YOU. Join the “Be The Match” registry with a simple, painless cheek swab to help save Norah’s life. Adding donors to the registry increases the likelihood of finding a life-saving match for Norah and others in need.”Rachel says their desperate search began after discovering that no in their family was a match.“So, that basically puts us in a place where her life depends on the generosity of strangers,” she told ABC. “We know that this is in some ways our way out. That it is the cure.”
California parents are fighting to find their 5-year-old daughter abone marrow transplantbefore it’s too late.
Norah Gratz-Lazarus of Alameda was diagnosed with Fanconi anemia (FA), an extremely rare genetic disorder that affects 31 kids a year in the U.S. and ultimately leads to bone marrow failure.
Without a bone marrow transplant, her family tells the news outlet, there is 90 percent chance that she will develop leukemia or bone marrow failure, her family tellsABC 13. Her parents have been trying to find her a match since her diagnosis, but have had no luck so far — even after getting 1,600 people to register as possible donors.
According to the U.S National Library of Medicine, the condition affects many parts of the body and can lead to not only bone marrow failure, but physical abnormalities, organ defects and an increased risk of certain cancers.
“It’s confusing because when you look at her, she looks like this totally normal kid. And she’s doing all these totally normal things. You don’t look at her and think that she has a life-threatening disease,” her mom, Rachel Gratz-Lazarus, tells the news outlet. “I want her to go to school. I want her to graduate from high school. I want her to go to college. It’s heartbreaking. We love her. It’s really hard,.”
Her father, Zachary Gratz-Lazarus, adds: “Our fears and anxiety about the future are completely overwhelming.”
Norah initially began experiencing progressive hearing loss and stunted growth, which led to her diagnosis. Both Rachel and Zachary are now on a mission to have more people sign up as donors onthrough their campaign page. The process is as easy as a cheek swab.
“Unfortunately, none of Norah’s family members are a match for her,” her parents wrote on their Facebook page for their daughter. “Norah has a donor match out there – it could be YOU. Join the “Be The Match” registry with a simple, painless cheek swab to help save Norah’s life. Adding donors to the registry increases the likelihood of finding a life-saving match for Norah and others in need.”
Rachel says their desperate search began after discovering that no in their family was a match.
“So, that basically puts us in a place where her life depends on the generosity of strangers,” she told ABC. “We know that this is in some ways our way out. That it is the cure.”
source: people.com
